Riley celebrated her 3rd birthday in April – with a pool party, of course! She is an avid swimmer now, and loves to plunge underwater – maybe she’ll be a marine biologist? She loves animals (especially her dogs), ice cream, and playing baseball (must run in the family.)
Riley was fortunate in that she was diagnosed with the ‘chromosome abnormality’ at a very young age and was able to receive the help she needed from health experts and professionals alike. But that’s not always the case. Upon this discovery Jenny and Ryan Dempster set out on a mission. After their child had been diagnosed with the syndrome they felt the need to teach others what they had learned along the road to recovery. As scared parents who had gone through a treacherous and long awaited couple of years they set out on a mission to teach and support others with 22q. Low and behold the Dempster Family Foundation was formed.
22q Deletion Syndrome is considered by many as a very rare diagnosis, but the reality is 1 out of 1,200 children have it. The problem is, doctors are not required to test for it therefore most cases remain undiagnosed.
Anyone interested in learning more about Jenny and Ryan Dempster can log on to their site, http://http://dempsterfamilyfoundation.org/ There you can learn about 22q, the foundation’s mission, more about Jenny and Ryan and their beautiful family including Riley and her story. Also, make sure to sing “Happy Birthday” to Riley on April 1. She will be turning the BIG 4!